The TAPS Support Foundation partners with organizations with similar philosophies and ideals to our own. We consider these organizations to be friends, and share mutual goals, as well as collaborating on projects and freely sharing information to our members. The TAPS Support Foundation invites any organization to connect with us and discuss prospective partnerships as well.
We rise by lifting others.
Robert Ingersoll
The TAPS Support Foundation partners proudly with:
Professional & ResearchPartners
Scientific and medical illustrations are an art form, and critical to helping both medical professionals and patients to convey knowledge and information, as well as to adapt it to different audiences. Visit their website here.
We’re proud to support the ongoing research into TAPS through the TAPS Trial. This vital clinical trial hopes to shed more light on the best treatment for TAPS. Visit their website
Our Twin Talks webinars are created in conjunction with the LUMC Fetal Therapy Team, and this innovative collaboration brings us exciting insights into the world of twin research,
De informatieve website van het LUMC over diagnostiek en behandeling van aandoeningen bij het ongeboren kindVisit their website
The LEMON study is a study that is complementary to the Twinlife study and focuses on the long-term outcomes of monochorionic twins with a growth difference before birth.
Visit their website
We’re proud to endorse the upcoming certifications from the Neonatal Butterfly Project. Watch this space.
Visit their website
We are proud supporters of the Neonatal Butterfly Project, raising awareness of loss in multiple births worldwide.
Visit their website
The Twinlife study is a medical scientific research project conducted by the Leiden University Medical Center. The purpose of Twinlife is to unravel how circumstances in the womb can influence health later in life.
Visit their website
Partner Organizations
The Dutch Multiple Birth Association (NVOM) supports research and families of multiples across Dutch-speaking countries in the world. They provide research grants, support, and resources that benefit parents of multiples in the Netherlands.Visit their website
The TTTS Support Team support families who have received a diagnosis of Twin to Twin Transfusion Syndrome by creating connection, community, and awareness.Visit their website
We are experienced specialists in complex birth care. We give healthcare professionals insights from a parent perspective in order to be meaningful for the psychological well-being of parents. “A parent’s first 1000 days are crucial for a child’s development.”Visit their website
The Fetal Health Foundation supports families receiving a fetal syndrome diagnosis, funds life-saving research, increases fetal syndrome awareness, and shares leading medical information on fetal syndromes.Visit their website
The mission of the Twins Trust is to provide their families with the information and support they need to enable them to thrive. They raise awareness, invest in research, and campaign for the best possible outcomes for their families.Visit their website
Providing a local resource for Australian families who are experiencing TTTS, ensuring these families have somewhere they can turn to during their difficult pregnancy, or after the loss of one or multiple babies. Visit their website
The Superhero Project uses creative thinking and the arts to inspire children with serious illnesses and special needs.Visit their website.
The TFMR SUPPORT ASSOCIATION has been formed to create a credible network of TFMR specific organisations, charities and support spaces that are safe for the TFMR community.Visit their website.
The Skye High Foundation was set up to help families dealing with the loss of a baby who was part of a multiple birth. They created the purple butterfly cot card, which is to be placed in an incubator or cot in memory of their sibling.Visit their website
Whether your journey is just beginning or you are already in this great adventure, Multiples of America is here for you.Visit their website.
Memberships
GLANCE is a global network representing newborns who are born prematurely, or sick. These infants have the greatest risk for death and disability. GLANCE firmly believes ever baby born deserves the best start in life. Visit their website
EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of 949 rare disease patient organizations from 73 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe. Visit their website
The European Foundation for the Care of Newborn Infants is the first pan-European organization and network representing the interests of preterm and newborn infants and their families. Visit their website
ICOMBO aims to raise awareness of the unique needs of multiple-birth infants, children, adults, and their families promoting their health, education, and welfare. Visit their website
VSOP is the national patient alliance for rare and genetic diseases in The Netherlands, with a strong international orientation.Visit their website.
Participant
Business Partners
Your favorite Australian Brands delivered right to your doorstep. Keep your pantry stocked with your favorite Aussie treats, even when you’re far from home. Tell them we sent you! Visit their website
Miss Neriss is a bespoke crochet and craft website run by the talented Nerissa Muijs, You can find out more about her, and her work on her website. Visit her website
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Future TAPS Support Foundation Partners
If you’re interested in partnering with us, please get in touch. Our foundation partners with organizations across the world in the name of research and creating friendships.