Happy New Year

Welcome to 2022. We’re so excited for this year, and what it can bring. 2021 was an amazing year for us, and we’ve shared some of the highlights in this video.

Below you’ll find some updates about some new changes to our website, messaging and images.

Website Refresh

We’ve had the same look for the past 18 months, so it was important to us that we did a review of our website. While our content is continually updated, it’s also important to pay attention to user feedback.

We’re currently in the process of ensuring that all TAPS-related content goes over to our advocacy website – tapssupport.com – while all foundation-related content stays here. This is important as we want our advocacy site to be a “one-stop” destination for all TAPS-related inquiries.

Another important piece of feedback we had was that while recognizable, the photograph of the TAPS twins was visually harsh, and wasn’t user-friendly. We worked with Gautier Scientific Illustration to create a new image, a drawing of the famous photograph, to replace the photograph. This gives the same messaging of the striking color difference in TAPS twins, but is less confronting, and is more visually appealing.

taps twins twin anemia polycythemia sequence support foundation stichting twins
  • https://www.facebook.com/tapssupport
  • https://twitter.com/tapssupport
  • https://www.pinterest.com/tapssupport/
  • https://www.linkedin.com/company/taps-support/

Visual Representation of Monochorionic Twins

At the end of last year, we gave a small grant to foetaletherapie.nl to purchase some new scientific drawings for their website. (This website is run but the LUMC, and gives both patients and doctors important resources and information about fetal syndromes).
They needed drawings for TRAP Sequence and Hydrothorax. They worked with Gautier Scientific Illustration to produce 2 images reflecting these conditions, and an additional image representing uncomplicated monochorionic twins.

We have been gifted the use of these images on our websites and social media feeds, so we will be updating our website accordingly to make use of these beautiful images.

  • https://www.facebook.com/tapssupport
  • https://twitter.com/tapssupport
  • https://www.pinterest.com/tapssupport/
  • https://www.linkedin.com/company/taps-support/
  • https://www.facebook.com/tapssupport
  • https://twitter.com/tapssupport
  • https://www.pinterest.com/tapssupport/
  • https://www.linkedin.com/company/taps-support/
  • https://www.facebook.com/tapssupport
  • https://twitter.com/tapssupport
  • https://www.pinterest.com/tapssupport/
  • https://www.linkedin.com/company/taps-support/

Social Media

During the break, we took a look at our content, made changes and updates to our messaging and refreshed our content. This is in line with our commitment to our fundamental pillars of Research, Education, Advocacy, Connections, and Hope – it is important that our content stays fresh, relevant, evidence-based, and most importantly, that we convey our message consistently and clearly, in line with the latest research. Find us on social media at Facebook, Instagram, Twitter, and LinkedIn.

  • https://www.facebook.com/tapssupport
  • https://twitter.com/tapssupport
  • https://www.pinterest.com/tapssupport/
  • https://www.linkedin.com/company/taps-support/
  • https://www.facebook.com/tapssupport
  • https://twitter.com/tapssupport
  • https://www.pinterest.com/tapssupport/
  • https://www.linkedin.com/company/taps-support/
  • https://www.facebook.com/tapssupport
  • https://twitter.com/tapssupport
  • https://www.pinterest.com/tapssupport/
  • https://www.linkedin.com/company/taps-support/

We’re always listening to your feedback, so please feel free to drop us a line about changes or things you see – we are only human, and we want to provide the best possible information for you. Get in touch here.

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