Announcing The Twin Talks Webinars

taps talks webinar series twin anemia polycythemia sequence twins

We are so excited to announce a new project of ours – the Twin Talks Webinars. Built around frequently asked questions in the twin communities, this innovative collaboration between the TAPS Support Foundation and the LUMC, Leiden means that parents have access to leading researchers, and on the flip side, doctors can see the questions their patients have about Twin Anemia Polycythemia Sequence (TAPS), and the discussions they want to have with their doctors.

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The TAPS Support Foundation: Connecting Families and Supporting Research Into Twin Anemia Polycythemia Sequence

In December 2013, on a cold morning in Leiden, 2 little girls were born. Identical twins born at 31 weeks, with one so pale and anemic that she looked like a ghost, and her sister, red, puffy, and overloaded with red blood cells. They had overcome incredible odds to make it this far, battling a chronic disease that had only been described for the first time 8 years earlier. Their story is the inspiration behind, and the beginning of the TAPS Support Foundation.

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