The TAPS Support Foundation: Connecting Families and Supporting Research Into Twin Anemia Polycythemia Sequence

In December 2013, on a cold morning in Leiden, 2 little girls were born. Identical twins born at 31 weeks, with one so pale and anemic that she looked like a ghost, and her sister, red, puffy, and overloaded with red blood cells. They had overcome incredible odds to make it this far, battling a chronic disease that had only been described for the first time 8 years earlier. Their story is the inspiration behind, and the beginning of the TAPS Support Foundation.

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