International TAPS Day 2022: Connections

International taps day 2022world twin anemia polycythemia sequence march 3 support foundation connections

We are so excited to announce the theme of International TAPS Day 2022. Inspired by the connections that cause TAPS, we wanted to share how these tiny connections have made a huge impact on the world of twins, with a new diagnosis and research.

We also want to highlight strengthening connections between patients and researchers, and creating meaningful and empowering conversations about the challenges we all face when it comes to Twin Anemia Polycythemia Sequence, either as a physician, a researcher, or a patient.

International TAPS Day 2022

This is going to be an epic year for International TAPS Day, with exciting activities and sessions planned, both online and in person. We can’t wait to connect with you, and continue creating a fantastic worldwide TAPS community.

Save the date and join us on March 3rd as we recognize 16 years of research into our disease, and connecting patients, researchers and doctors together to help raise awareness of our rare disease.

We can’t wait to connect with you!

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Announcing The Twin Talks Webinars

taps talks webinar series twin anemia polycythemia sequence twins

We are so excited to announce a new project of ours – the Twin Talks Webinars. Built around frequently asked questions in the twin communities, this innovative collaboration between the TAPS Support Foundation and the LUMC, Leiden means that parents have access to leading researchers, and on the flip side, doctors can see the questions their patients have about Twin Anemia Polycythemia Sequence (TAPS), and the discussions they want to have with their doctors.

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