Meet The TAPS Support Team

One of the best parts of our foundation is we’re all one big team. We work closely together and are in regular contact about the issues that matter. We support each other, and our mutual passion for raising awareness of TAPS has created a strong bond. We’ll revolutionize the way multiple pregnancies are diagnosed, treated and followed up through our fundamental pillars of research, education, advocacy and hope, and advocate for twins worldwide while upholding our mission, vision and values. We are the TAPS Support Team.

We are colleagues, we are advocates, and we are friends. Together, we can achieve anything.

Meet The TAPS Support Team

Stephanie Ernst
Founder and TAPS Nerd


English, Nederlands

A self-confessed TAPS Nerd, my mission is to deliver information about TAPS that is up to date and easy to understand. Stichting TAPS Support makes information about TAPS readily accessible so that patients never feel alone in their diagnosis while supporting research.
Connect with me here

She/Her

Katja Schmitt-Weese
Treasurer/2IC


M.A. Nursing Science
Deutsch, English

Call me Katie! I'm passionate about a patient’s right to information about their care and access to research. I bring my research and front-line care experience to TAPS Support to help support parents.

She/Her

 

Marius Ernst
Secretary

PhD. Ir.
Deutsch, Nederlands,English

I'm a regular dad keeping my mission in mind. I bring a grounding force to the energy of the TAPS Support Team. 

He/Him

Prof. Enrico Lopriore
Patron

Neonatologist
Dr. Lopriore is a professor of neonatology and fetal medicine and head of the Neonatal Intensive Care Unit at the Leiden University Medical Center (LUMC). His area of expertise is in various fetal disorders, including complicated monochorionic twins with TTTS, TAPS, and SIUGR.

Dr. Femke Slaghekke
Senior Research Advisor

Maternal Fetal Medicine Specialist and Fetal Surgeon

With intensive research and publications on the Solomon Laser Technique and TAPS, Femke is part of the Fetal Therapy Team at the LUMC in Leiden.  As an obstetrician and fetal therapist she is passionate about identical twins and improving their lives.

Dr. Joanne Verweij
Research and Ethics Advisor

Maternal Fetal Medicine Specialist & Fetal Therapist

Joanne is part of the Fetal Therapy Team at the LUMC in Leiden. She is an obstetrician and fetal therapist. Her aim is to improve outcomes for complicated monochorionic twins and their families. She has a special interest in perinatal ethics, with her research focusing on fetal therapy and extreme prematurity.

Dr. Lisanne Tollenaar
Research and Scientific Advisor

TAPS Researcher

Lisanne has been completed her Ph.D. within the LUMC on Twin Anemia Polycythemia Sequence.  She has been part of the TAPS Trial and collaborated with 16 fetal therapy centers to analyze the data from the TAPS Registry.  Her research into delta MCA-PSV and the long-term effects of TAPS is vital for families.

Dr. Jeanine van Klink
Psychologist

Long-term Effects Of TAPS

Jeanine is a child psychologist and researcher.  Her research focuses on the long-term outcomes for identical twins, especially those affected by complications in utero.  She leads the research into the long-term effects of TAPS at the LUMC.  

Jaap Fijen
Techspert

Webdesign, SEO, and LGBTQIA+/Inclusiveness

Jay's passion for web design and SEO means that our websites run smoothly.  He also advises us on inclusiveness practices.  

He/Him

Dr. Lauren Nicholas
North American (US) Advisor

As a parent of monochorionic twins affected by TTTS, Lauren's passion led her to research in the ethics and epidemiology of twins.  Her role is to advise on regulations and rules in north America, and help raise awareness. 

Mart Smit
Twin Run

Twin dad, and definitely no stranger to the complications of multiple pregnancies, Mart's energy and enthusiasm helped us raise over €10,000 for twin research last year.  He is the driving force behind the Twin Run, our annual fundraiser. 

Emilie & Mathilde Ernst
Heads of Mischief and Mayhem

The original "TAPS Twins", Emmy and Tilly's story inspired the creation of TAPS Support.  Born at 31 weeks, both girls are no strangers to the long-term effects of TAPS, and make their parents determined to raise more awareness of the complications of twins. 

In their spare time, they love cookies, K3, and creating chaos. (and we wouldn't have it any other way!)


Taps support team

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