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In 2021, we celebrated the first official International TAPS Day.
In 2024, we’re focussing on education – both for professionals and parents around a TAPS diagnosis, from before birth, to NICU, and beyond. We want to bring awareness to the fact TAPS is a lifelong diagnosis, and the evolution of research over the past 18 years.
International TAPS Day 2024
This year we want to bring more awareness across the world to Twin Anemia Polycythemia Sequence, and share the stories of parents and professionals to the wider public. International TAPS Day will show the importance of screening, interventions, and also long term followups from both professional and patient perspectives.
Across social media, you’ll see the different perspectives, all sharing the one message – being up to date with infomration about TAPS is vital.
The Countdown to International TAPS Day
About International TAPS Day
We recognize March 3rd as International TAPS Day because this was the day that our disease got a name, back in 2006. Within days of each other, 2 papers were published – on March 1, Robyrr et al published this paper describing a unique complication of TTTS laser surgery, where tiny connections were missed or not sealed completely.
Then on March 3rd, a second paper, describing spontaneous TAPS was published by Lopriore et al. This paper described tiny connections in the placenta that caused polycythemia and anemia in twins sharing a placenta. From this paper, Twin Anemia Polycythemia Sequence got its name.
March 3rd Is International TAPS Day.
In 2021, we celebrated the first official International Twin Anemia Polycythemia Sequence (TAPS) Day, and it was recognized across the globe. The theme was “15 Years of TAPS Research.“
“TAPS research has evolved so much in the past 15 years. We now know how and when to screen with MCA dopplers. We also know more about the other signs and that it is vital to look for those. It’s also essential that we recognize the short and long-term effects of post-laser TAPS and spontaneous TAPS. Research is evolving continuously, and we need to raise the awareness of staying up to date with the latest findings. Twin Anemia Polycythemia Sequence Day is about recognizing the evolution of TAPS research and raising awareness. ”
Dr. Enrico Lopriore
Patron of the TAPS Support Foundation