In 2021, we celebrated the first official International TAPS Day, in order to recognize 15 incredible years of TAPS research.
There is a real need worldwide to open the conversation about Twin Anemia Polycythemia Sequence. No longer “just a form of TTTS,” but a real disease, with real treatment options and a tangible impact on the families of those affected.
We struggle for recognition for our disease, meaning that often vital screening is missed or dismissed due to outdated guidelines, a plethora of myths, and a lack of recognition in the medical community. March 3 is an opportunity for us to open the conversation about TAPS and create meaningful, worldwide dialogues.
March 3rd Is International TAPS Day.
March 3rd is the anniversary of the publication of the paper that named TAPS – “Twin Anemia Polycythemia Sequence in Two Pairs Without Oligo-Polyhydramnios Sequence.” by Lopriore et al, published in 2006.
This date was chosen to recognize the day our disease was given a name.
In 2021, we celebrated the first official International Twin Anemia Polycythemia Sequence (TAPS) Day, and it was recognized across the globe. The theme was “15 Years of TAPS Research.“
“TAPS research has evolved so much in the past 15 years. We now know how and when to screen with MCA dopplers. We also know more about the other signs and that it is vital to look for those. It’s also essential that we recognize the short and long-term effects of post-laser TAPS and spontaneous TAPS. Research is evolving continuously, and we need to raise the awareness of staying up to date with the latest findings. Twin Anemia Polycythemia Sequence Day is about recognizing the evolution of TAPS research and raising awareness. ”
Dr. Enrico Lopriore
Patron of the TAPS Support Foundation
Celebrate International TAPS Day in 2022
We can’t wait to celebrate again in 2022, and we’re happy to announce the theme is “Connections”
We’ll be updating this page regularly with news and updates about the theme, and don’t forget to follow us on social media!