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Ready to join in spreading awareness of TAPS, or want to see what’s on? Here’s where you’ll find a list of all the International TAPS Day Events!
February 28th – Rare Disease Day
Ok, so while this is not our official awareness day, we think it’s important to highlight the fact that TAPS is a rare disease. Why is this so important? This year, Twin Anemia Polycythemia Sequence was given it’s very own ORPHA code. We’re proud supporters of Rare Disease Day each year, and since 2020 we have been an official Friend.
Follow our social media on February 28th to learn more about ORPHA, and the impact this has for TAPS and research.
March 1 – Tuesday Takeover Rare Revolution Magazine
We are taking over Rare Revolution Magazine’s social media for the day!
Rare Revolution are featuring Twin Anemia Polycythemia Sequence for the entire day, so make sure you check them out and share the facts!
March 3 – International TAPS Day
TAPS Support
It’s International TAPS Day! Join our social media as we share stories, updates, and information about TAPS, and talk about the importance of making connections.
Be sure to follow, like and share our posts!
Bounce the Beachball!
Bounce our virtual beachball across the world! We’re aiming to land in every continent and every country as our beach ball crosses the world.
Find out how you can join, and where the ball has been by clicking this link.
Connect With TAPS Families
Members of our Facebook community will have the chance to access 2 live chat sessions where they can meet and greet each other, and connect to each other.
Session 1: 8:30am CET, 2:30AM EST, 6:30pm AEDT.
Session 2: 9:00pm CET, 3:00pm EST, 7:00am (4 Mar) AEDT
Connect with other TAPS Families in our Facebook group.
Book Launch: TAPS, Identical Twins and Covid – Nichola Luther
When you’re faced with the unfaceable; when situations out of your control leave you stuck in your worst nightmare; when the unimaginable happens – what do you do? Nichola Luther’s book: TAPS, Identical Twins and Covid: A Story of Surviving launches March 3rd. Visit tapstwins.co.uk and watch our page on TAPS day for updates.
Follow Nichola’s social media below for more updates.
LIVE EVENT: TAPS Awareness and Book Launch. 19:00 GMT
Join Asma Khalil, Nichola Luther and Stephanie Ernst for a live event!
Hosted by St Georges Hospital, London and the Twins Trust, we’ll be talking about the book launch, and about raising awareness of TAPS.
Register for the event by clicking here:
LIVE EVENT: Twin and Multiple Pregnancy Webinar
Discuss the diagnosis and management of difficult cases of twin and multiple pregnancies with Prof. Asma Khalil and The Twins Trust.
Register for the event by clicking here:
Add Your International TAPS Day Events
Are you hosting an International TAPS Day Event and you’d like to add it to our list? Send an email to hello@tapssupport.com, and we’ll help you promote it via social media. You can also tag us and we’ll share it for you as well.