International TAPS Day – Connections 2022

Because of these small connections, TAPS families have actively sought each other out, and supported each other through a challenging, and misunderstood diagnosis. They have helped each other battle myths, and empowered each other to advocate for ongoing care and further diagnosis.

We are connected through research into TAPS, and how this impacts our lives. A TAPS diagnosis is difficult, as while we know a lot about this rare disease, we are still learning more. It’s important that we connect patients to research and to doctors who embrace the latest knowledge and information about TAPS.

Worldwide, we are connected by a rare disease. It doesn’t matter who you are, where you live, or your education level – all twins who share a placenta are at risk of TAPS. We need to raise awareness of our rare disease, and through this passion to educate and empower rare disease patients, we are connected.

Important clinical trials like the TAPS Registry and the current TAPS Trial have helped researchers connect the dots, and understand more about how it happens, and the short and long-term effects of our disease. These connections are vital to continuing research and raising awareness in the medical community.

Through connecting and creating communities made up of researchers, doctors, patients, and families, we can support each other, educate each other on the topics that matter, and collaborate on new research projects.