The TAPS Support Foundation

What is the TAPS Support Foundation?

We are a not-for-profit foundation based in the Netherlands. We passionately support research into Twin Anemia Polycythemia Sequence (TAPS) and related conditions, as well as supporting patients who are diagnosed with this disease. Our passion for raising awareness of TAPS also extends to raising money for research and helping families connect to each other, and the latest findings. You’ll find more about our projects here.

We operate under 5 fundamental pillars: Research, Education, Advocacy, Connections and Hope. Discover more about our mission, vision and values here.

The Twin Run is our major fundraiser, first held in October 2021.

International TAPS Day is celebrated on the 3rd of March each year.

The Dutch word, stichting, translates to “foundation” in English. We are also known as the TAPS Support Foundation internationally, but our legal name is Stichting TAPS Support.

We are a unique combination of families, researchers, and care providers, and together we are dedicated to breaking down the walls between research and patients, bringing the latest research to diagnosed patients, and ensuring that research continues into TAPS.

TAPS may be rare, but together, we’re going to make sure that families are supported through continuing research and creating a community where stories are shared, and no one is alone in their diagnosis.

Discover more about TAPS on our advocacy website.

TAPS is Real.